Wednesday, May 8, 2013
At the 6.5 year mark I may have reached my breaking point
I think I may have just had the worst 24 hours of my hip journey. Given everything I have been through, I think I have done a damn good job of keeping it together, pasting a smile on my face every day, and just continuing to plug away. In the last few days/ weeks, the pain on the side of my leg has gotten so bad I can't take it anymore. I am also developing compensatory tendinitis in every muscle around my hip, contributing to my pain issue. The fact that the injection did nothing for me and the increasing lateral pain has left me in such a poor emotional state that I have had more than one meltdown in the last 24 hours. I don't know what the next step is, I don't know what to do and I don't know how I will manage at this point with pain this severe. I am hoping it is a temporary flare up- maybe from too much walking or activity.
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2 comments:
Hey Susie this is pepper . I don't know what to tell you but hang in there. There is no doubt from all your past surgeries what 5-6 on this one hip, you deserve multiple breakdowns. I am very emPathetic to you and your situation. I know you are in pain physically and mentally and you have been enduring this ongoing problem since 2007. I can't imagine I don't see how you have kept your sanity for such a long period of time. I've been dealing with hip and back surgeries for 4 years but not to what u have been thru and are still going thru. Im sorry the shot did not help I thought it might relieve some of ur pain like it did mine. I will keep praying for u and ur situation. Oh just to let u know I've been having these tics and spasms in my foot and lower leg. O's said its back neurosurgeon said the disc he operated on which in a year reuse re herniated is not causing it . Or thats what the MRI shows. So I go to my general practitioner and he does some test . He is concerned at all the corticosteroid pain shots I have taken in 4.5 years 16 in all now. He says those shots mess with blood sugar ,thyroid and other hormones. He said I am b12 deficient 160 testosterone is bad low And fasting blood sugar is high.
I need two hip replacements, a knee and a shoulder. I'm not doing any of those barring a significant injury that necessitates surgery to repair damage. I've heard too much about surgeries not work in EDS patients and lord knows I've had enough already (total of 18 surgeries over the years). I treat the pain and there's not much to do about the causes. I can empathize. There's a new treatment now, a medical procedure, that is a stimulator implant that blocks pain. My son is in a trial for his lower back and others in the trial are getting the procedure for jaw pain, shoulder pain, knee and hip pain. My son currently has a spinal stimulator implant that helps significantly with his disk pain. Just something to look into. I empathize with your physical and emotional pain. Sometimes it just gets to be too much. Perhaps it's time to treat the pain rather than the joints. Some days I can't walk (I have a power chair and a scooter, one for indoors and one for outside, walking the dogs, etc.). Maybe some alternatives to help getting out and about would ease some of the depression. I have to get out of the house or I'll go nuts. And I work at home teaching classes online so if I'm not careful, I'll do nothing but work and sleep. We all need some additional mental stimulation to take our minds off the pain. Is there something you enjoy doing or would like to learn how to do that might provide this outlet for you? I've taken up photography (started with my smartphone camera LOL and now I have a cute little digital camera that I have no idea yet how it works but I'm getting there) just for something to do. If I have a good day, I can get away from home and take photos. If I'm having a bad day, I take my scooter and go around the neighborhood photographing everyone's flowers and pets :-) Just something to think about. You do need to find something you enjoy to take your mind off the pain. There are lots of free classes online about anything and everything, from technology stuff to sewing and knitting, to photography to growing a garden and anything else you can think of. Take care --
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